#SpinalMuscularAtrophy என்ற அரியவகை நோயால் பாதிக்கப்பட்டுள்ள குழந்தை மித்ராவுக்கு அதற்கான மருந்துகள் மீது விதிக்கப்பட்டுள்ள வரி - விலை காரணமாக...
Chief Minister M.K. Stalin expressed profound anguish over treatment impediments for child Mithra battling Spinal Muscular Atrophy due to steep medicine taxes.
M.K.Stalin@mkstalinOriginal post
#SpinalMuscularAtrophy என்ற அரியவகை நோயால் பாதிக்கப்பட்டுள்ள குழந்தை மித்ராவுக்கு அதற்கான மருந்துகள் மீது விதிக்கப்பட்டுள்ள வரி - விலை காரணமாக சிகிச்சையில் ஏற்பட்டுள்ள இடர்களை அறிந்து மிகுந்த வேதனையுற்றேன்.
Chief Minister M.K. Stalin expressed deep emotional anguish upon learning about the painful medical challenges and financial roadblocks confronting the family of toddler Mithra, who was diagnosed with the rare and life-threatening genetic disease Spinal Muscular Atrophy. Deeply moved by the plight of the young child, Stalin voiced strong distress over how excessive import tariffs and exorbitant commercial drug pricing create insurmountable obstacles for parents seeking timely clinical interventions.
The Chief Minister affirmed that innocent children must never be forced to suffer or succumb to preventable complications due to unaffordable drug costs and bureaucratic fiscal barriers. Stalin directed state health officials to extend all possible medical assistance and coordinated with crowdfunding initiatives to ensure the child received necessary gene therapy. Simultaneously, he escalated the humanitarian issue to national authorities, demanding institutional exemptions from central taxes for pediatric rare disease medications.
Stalin compassionate and swift personal intervention demonstrated his empathetic approach toward citizen suffering. By transforming an individual family tragedy into a nationwide advocacy campaign for affordable rare disease treatments, his leadership provided immediate solace to distressed parents and championed essential healthcare justice for afflicted children.